Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Feb 2, 2019 12:00:11 GMT 1
Hi Mark And Suzanne
Nothing we can say will ever replace the lives you have, you will still have the memories of being together and it is those that you need to cherish and live for in these sad short days
I, like everyone else here, wish you all the very best and hope you can both live out these days in the way you have always lived them
You can see in your photographs the fun and laughter of Suzanne and what she brings to you and your children's life
All the very best to you and your family, stay strong all of you
Howard
|
|
|
Post by iwantalc on Feb 2, 2019 12:04:53 GMT 1
so sad to hear this ,
|
|
|
Post by reggieperrin on Feb 2, 2019 17:15:20 GMT 1
Hi Mark & Suzanne,
Nothing I can say or write will be sufficient. I'm glad you both have each other at this trying time. I've unluckily experienced something similar and if there's anything that I can do to help in anyway, please just say. We've never met but I'm not too far away from you if ever want to chat.
Hope you're ticking things off your collective bucket list.
All the best Reg
|
|
|
Post by gazzatt2 on Feb 2, 2019 23:34:07 GMT 1
read this with tears in my eyes l like others have no words but my best wishes to you
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Feb 3, 2019 0:59:44 GMT 1
Mark, What you wrote brought tears to my eyes, and I can't begin to imagine what you both must be going through...it also speaks volumes about what a good guy you are, and how much you love Suzanne. All the best to you both, live and love every moment you have together. Duncan
|
|
|
Post by smokin074 on Feb 3, 2019 7:36:54 GMT 1
Hello Hi Mark & Suzanne,
You dont know me & I have never chatted by email , your story , has touched me deeply here in Australia, I have had similar family & friends experience, my prayers are with you both.
|
|
Dave B
Drag-strip hero
Posts: 240
|
Post by Dave B on Feb 3, 2019 11:29:03 GMT 1
I'm moved to tears by the desperate sadness of your situation, and also by the love between the two of you. Stay strong, never hesitate to ask for help and support, and Carpe Diem.
|
|
|
Post by muttsnuts on Feb 3, 2019 12:36:13 GMT 1
Mark, you know I don't need to say anything (its all been said above), my thoughts and prays are with you both, its the most horrible thing to go through.........
|
|
|
Post by fozzy17 on Feb 3, 2019 14:58:21 GMT 1
What do you say in this type of situation, apart from i wish you all the best and your wife is very pretty, you struck gold there fella, puts life in perspective, you can get caught up in moaning about everything in life like going to work and paying bills, but health and family and friends are top of the list, when you hear things like this it makes you think, all the best..
|
|
|
Post by fozzy17 on Feb 3, 2019 15:00:05 GMT 1
in 3 years i lost my father with cancer, my brother with terminal lung disease and my sister is recovering from cancer, although now on the mend
|
|
|
Post by yamark on Feb 3, 2019 15:27:55 GMT 1
The kindness and concern shown by you all is overwhelming and has me in tears a number of times. From the avalanche of PM's I've received I can tell, Sue's story has brought back memories of family loss for several of you. It also is clear that many of you wish to know more about Sue.
Sue had her birthday last Monday (28th Jan), she was born in 1966, so is now 53. Obviously I'm bias, as I've always thought she's stunning (I've always thought I was punching above my weight!), but her personality and character are even more appealing. I've never heard her speak badly about anyone, always happy, kind and considerate, and time to talk and smile to anyone - a real peoples person. Sue worked in a large secondary school, 2,300 students as front of house for the canteen. She knows every students name, every last one, needless to say she is a firm favourite among all the staff and pupils.
So back to Sue's story. After the results of the biopsy (17th May), we were told of the 6 weeks of Radiotherapy and Chemo ahead. On 31st May, we travelled to Charing cross (1 hour by train, 1/2 hour- 1 1/4 hour by car door to door) for the base MRI and a blood test. We then got a call that Sue was not on the system and Radiotherapy would be delayed by 2 weeks! Sue was entering week 7 from diagnosis (remember without treatment she might die after 12 weeks), meaning RT and Chemo starting on week 9. Everyday I was losing more and more of her, personality, speech and memory. I went straight over to the Radiotherapy department and spoke to the head of dept. I managed to get the delay to 1 week. It takes 10 days to work out and plan beam direction, duration, intensity and how many pulses. The margin for error is 1mm. We had the mask made the next day. This is custom formed to "clamp" Sue to Radiotherapy machines table.
I took a picture (see what I mean about Sue always smiling)
IMG_0133
Also one of the photos taken by PSB
_85Q5009
And our kids at Christmas, Paul, Sarah, Steve and David
IMG_0224
Sue then had the 6 weeks RT and Chemo, of course she lost most of her hair and was piling on weight because of the Steroids.
* There is NO GOOD NEWS from now on - some of you may not want to keep reading. *
Sue's tumour is located in memory and speech, these functions were affected very quickly. As the tumour progressed (it "eats" brain material - it doesn't push it to the side) by the end of treatment (late July) Sue's vision and motor nerves were affected. She was going blind on both right halves of her eyes and the start of paralysis on her right side started. We managed to get to the South coast 4 times, the Channel Isles and numerous meals with friends. In September Sue had her first "cycle" of Chemo (1st of 6). She then failed 3 successive blood test and then 3 of her liver markers were too high (because of the Steroids, that are keeping her brain from swelling). All treatment stopped. Except the drugs to keep her alive. In October Sue was fully blind on both right halves, and almost paralysed on the right half of her body. She then had several blood clots on her lungs among the occasional seizures and was admitted to Charing Cross for 10 days.
Since then she is bed bound, unable to turn in bed, she understands mostly what is said to her, but is very confused and struggles to communicate. The words come out jumbled and wrong. She has been under the palliative care team since October. The tumour reached 7cm in diameter, treatment reduced it to 4.5cm, but it is now approximately 9cm in diameter. She now needs 24 hour care; we are keeping her at home.
Sue will not see another summer
When I'm ready I will post my favourite picture of her.
Thanks again to all of you for your kind wishes and words. I read all of your posts to Suzanne - she smiled and said "that's lovely"
Mark
|
|
|
Post by fozzy17 on Feb 3, 2019 16:38:56 GMT 1
Tough times ahead, even though i dont know you personally i am thinking of you and your family, this could be any one of us at any time, best wishes, your daughter is a double of your wife
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Feb 3, 2019 16:40:18 GMT 1
Hey Mark
I think we are all in tears over this, we lost a close friend to an inoperable brain tumour at Christmas too, we feel your pain and we do feel for you
We really hope Suzanne is not in pain and will continue so
Take care and post when you are ready
Howard
|
|
|
Post by Yogi on Feb 3, 2019 17:04:26 GMT 1
I must read this more than 10 times a day and every time it guts and saddens me
Being only a month older than Sue and also having a sick wife it’s very close to home
I hate to say it Mark but it’s true,you’ve spent your life punching ,Sue really is a true stunner
You are a true gent though and I can see why Sue has spent her life with you
cherish every moment and stay strong mate
Atb Matt
|
|
|
Post by beardy on Feb 3, 2019 19:22:24 GMT 1
Thinking of you and your family
|
|
|
Post by Tobyjugs on Feb 3, 2019 22:07:47 GMT 1
Hi Mark my thoughts are with you and your family in this very sad time.
Tony
|
|
|
Post by rich on Feb 3, 2019 22:15:51 GMT 1
Not much I can say that hasn't already been said. Truly gutted and saddened by this awful news.
My thoughts are with you and your family Mark
|
|
|
Post by loctite on Feb 3, 2019 22:24:33 GMT 1
bless you all at this very sad time
|
|
|
Post by jakethepeg007 on Feb 3, 2019 23:35:08 GMT 1
Such terrible news to hear, although I and so many others here don’t know you I’m sure we all feel we have bonded with you reading, watching and eagerly waiting your fantastic work. Wishing you and your family strength and good memories to keep you going
|
|
|
Post by JonW on Feb 4, 2019 2:04:48 GMT 1
Its hard to post anything after reading your update Mark, Im just gutted for you all and full of emotion as Im 13months in remission after a nasty surgery to remove cancer as I type. I dont mention it ever even to my mates, and have not mentioned it here before, I dont want it to define me, I wont let caner own me ever.
This thread is certainly not about me, but I hope my insight might be useful to someone. Ive come to realise a few things as I get older. Sadly, by our age we all have been touched by cancer either personally or loved ones - not just older people, our age and younger too. The worst thing for me was not being at death's door as such or being sick or in pain, but that I watched my family struggle to keep it together after my diagnosis and treatment. I really felt that their pain was harder to bear and even more stressful than my own battle and found myself being strong for them more than anything, which was unexpected and sounds weird, but I guess that's what you do when you see your loved ones in pain if its all you can do to help them. While we may get despondent our inner strength shows through etc.
Cancer is a b4stard, the only positive any of us seems to have in all the hell it brings is the time we have left with, and our memories of, those we love. I really do urge everyone to do what you want while you can, you never know what is round the next corner. Perhaps reintroduce a bit of the kind low stress and fun life you lived at 18 and stop putting things off or being diverted from the things you enjoy. However, I know that until something bad happens most people read lines like that and just think, 'yeah yeah, I should do that, one day'. Sad but true.
I can only continue to send my best to you, Suzanne and your family Mark. I said it before and I'll say it again, you are in my thoughts. how that helps I dont know, but i sincerely hope that pain shared is pain lessened in some way.
|
|
|
Post by Denzil on Feb 4, 2019 9:24:05 GMT 1
I have no words to describe what you all must be going through. My thoughts are with you and your beautiful family.
|
|
|
Post by petehodges on Feb 4, 2019 13:37:04 GMT 1
hi mark
i,m in tears after reading this i lost a good mate to this awfull disease last year , my heart is breaking for you & your lovely family i know its killing you inside but try & stay strong mate best pete
|
|
|
Post by wallcraft on Feb 4, 2019 22:35:35 GMT 1
Hi Mark and family
So sorry for this dreadful news, can't really express my thoughts into words but will be thinking of you all in this dark time. Suzanne looks like a beautiful ray of light and that will always be with you all.
Mark.
|
|
|
Post by roach3 on Feb 5, 2019 3:46:55 GMT 1
im relatively new to this forum and don't know yourself or anyone else personally but your story brought a lump in my throat reading it.
like everyone else here my thoughts go out to you and your brave family
charlie
|
|
|
Post by tacky1 on Feb 5, 2019 3:59:57 GMT 1
The worst news anyone could ever receive. Very hard to read this Mark, You have a beautiful wife and family, My thoughts and prayers go out to you... Paul.
|
|
jay
Thrash Merchant
2 stroke or not 2 stroke
Posts: 419
|
Post by jay on Feb 6, 2019 18:24:19 GMT 1
Thoughts and prayers are with you and your family Mark and Suzanne Best wishes Jay
|
|
|
Post by 0h5h1t on Feb 6, 2019 23:19:32 GMT 1
Mate, I am so saddened to hear this. I read it when you first post it but haven't been able to bring myself to reply to you. My Mrs has MS quite badly and this really bought home to me how hard things might get. I choke every time I read your post and the replies from members. I think Yogi puts it far better than I so apologies to Both you and Yogi but I'll repeat his words.
I hate to say it Mark but it’s true,you’ve spent your life punching ,Sue really is a true stunner
You are a true gent though and I can see why Sue has spent her life with you
cherish every moment and stay strong mate
Best wishes
Karl
|
|
|
Post by mikee on Feb 7, 2019 13:49:28 GMT 1
like a lot of people its hard to put into words what im feeling right now
I just wish you all the best
mike
|
|
|
Post by urbantangleweed on Feb 8, 2019 0:55:31 GMT 1
Life can be so cruel sometimes, particularly when good people suffer terrible things, it's awful and just wrong. I wish you every strength to deal with the difficult times ahead.
|
|
|
Post by bid on Mar 16, 2019 21:15:07 GMT 1
this gives me so much tears, truely sorry, all my love to you all
|
|